A six-month-old boy tragically passed away after a brain tumour was misdiagnosed
Peterborough: It’s heartbreaking to hear about little Louie Moss, a six-month-old boy who lost his life due to a brain tumour that doctors initially thought was just a milk allergy or teething. Can you believe that? He started missing milestones and wasn’t gaining weight, which led to the wrong diagnosis.
Despite trying antibiotics and switching to milk alternatives, Louie’s health kept getting worse. It wasn’t until a lumbar puncture at the hospital showed high white blood cell counts and a CT scan revealed a big brain tumour that they realized how serious it was.
Louie had surgery at Addenbrooke’s Hospital, where doctors managed to drain some fluid and remove most of the tumour. Sadly, it grew back quickly. He spent his last days at a hospice in Cambridgeshire and passed away in April 2022.
In a touching tribute, Louie’s dad, Robert, is running the London Marathon to raise money for Brain Tumour Research. He shared how different raising Louie was compared to their first son, Eli. They thought Louie’s symptoms would improve, but they didn’t, and the news of the tumour was just devastating.
Robert admitted he didn’t know much about brain tumours and was shocked to learn his baby had one. He felt it was tough for doctors to spot such things in babies, as they often misinterpret symptoms. Louie had trouble gaining weight and was often sick before they finally got the right diagnosis.
When they were told Louie might only have weeks to live, they chose not to pursue chemotherapy, feeling it would be too much for him. It’s a decision no parent should have to make, and it was incredibly hard for them.
Robert, who works for the local council and has two other kids, is taking on this marathon challenge despite not having run one in over a decade. He mentioned it’s a bit of a juggle with work and family, but the support from fellow runners has been amazing.
He’s determined to make a difference, saying he wants to honor Louie’s life and help future patients have better outcomes. Carol Robertson from Brain Tumour Research highlighted how tragic Louie’s story is, noting that brain tumours are tough to treat and often more deadly than leukaemia.
To support Robert’s marathon efforts for Brain Tumour Research, you can click here.
